1. Esmé Slabbert
    December 3, 2019 @ 1:25 am

    Hi Amy. Like Marian, I have not heard or entered EB as you described it. Your Aunt Sandy is a wonderful, gentle and most loving person, that I am absolutely sure about. She strives to help others, make them comfortable, despite her own discomfort with EB. She is a role model and a person to look up to and one can but strive to be a mere fraction of a person your Aunt Sandy is. Thank you so much for sharing your love, devotion for her and when you see her or talk to her again, tell her I admire her, even though I do not know her, except through these loving words you wrote.
    You are blessed to know her and to call her Aunt Sandy.


    • Amy
      December 3, 2019 @ 8:27 pm

      Yes, Esme, I am very blessed to know her. Thanks so much for taking the time to read and I will be sure to tell her of your admiration. She is a role model for sure.


  2. Marian Wood
    December 1, 2019 @ 12:06 pm

    Wow, your Aunt Sandy sounds amazing! I’ve never heard of EB, yet in my work life I always ask people about their skin – protein requirements.. this post is interesting, poor lady and she sounds so strong.

    It’s lovely that she has such a strong faith and that she is there for you. Thanks for sharing this Amy, she is an inspiration!


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